Making the RARE voice heard
Rick, Founder and Director of Positive Exposure (https://positiveexposure.org/) has taken images of people with albinism in several countries to help deepen awareness and understanding of the condition globally, along with using photography to raise their confidence and self-esteem. Albinism, usually characterised by white hair, pale skin and severe sight impairment, affects around 3,000 people living in the UK and Republic of Ireland.
Photo Credit Rick Guidotti
About the Albinism Fellowship
Founded in 1979, the Albinism Fellowship (www.albinism.org.uk) is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. The fellowship, which is a registered charity, also provides information about the condition to professionals working with people with albinism and other appropriate interested parties.
The vision for the Albinism Fellowship is that all people with albinism should have the opportunity to reach their full potential.
About Positive Exposure
Positive Exposure, (website: https://positiveexposure.org/) is a not-for-profit organisation that uses photography, film and narrative to transform public perceptions of people living with genetic, physical, intellectual and behavioural differences, including albinism.
Based in New York City, in the United States, its educational and advocacy programmes reach around the globe to promote a more inclusive, compassionate world where differences are celebrated.
Albinism is a comparatively rare genetically inherited group of conditions which lead to a reduction or complete lack of pigment (colour) in people’s skin, eyes and hair. This can result in pale skin which burns easily in the sun. People with albinism can also have virtually white hair, severe short sight and photophobia (a severe sensitivity to light). Around 3,000 people live with albinism in the UK and the Republic of Ireland. More information is available at: http://www.albinism.org.uk/about_albinism.php