Jennie is a married mum of three and writer of @LittleLifeofMine. She also happens to be part of the RARE community and lives with several chronic conditions, including EDS Hypermobility type, Postural Orthostatic Tachycardia Syndrome, Gastroparesis and Inflammatory Bowel Disease. We featured her voice in our Autumn Issue, Patient Voice, (refer My Time page 48), and we are thrilled that she has agreed to join us as a guest columnist for Rare Revolution Magazine, where she will become a regular voice, bringing her own brand of passion, humour, sarcasm and emotion.
“I seem to get a new diagnosis almost every few months! I do my best to enjoy life and stay upbeat, but it can be hard as I'm generally in pain and exhausted. When I was told I wouldn't work again that was a huge blow. Becoming disabled not only took away my health, I felt it muted my voice. I had no standing in the world. So I began my blog. I wanted to share my experiences and my thoughts and feelings on issues pertinent to the disabled community. Issues close to my heart. I'm really surprised and humbled by how far it's come, and how many people have told me they're helped and encouraged by my writing.
The only way I can write is from the heart, so that's what I will be doing in my new column within Rare Revolution. I'm really looking forward to sharing my work, and hope you all enjoy reading it.” Jennie Patterson