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Patient voice
Patient voice
MNGIE: Verity Grainger’s mission to raise funds for a life-saving therapy
By admin
30 March 2022
Patient voice
Cavernomas—a patient’s efforts to understand the possible systemic implications of a defect in the KRIT1 (CCM1) gene
By admin
14 February 2022
Patient voice
The global disability community and the DE&I discussion: a match that needs to be made
By admin
9 February 2022
Patient voice
Caring for his children with VICI syndrome: Muzaffar Anjum’s story
By admin
8 December 2021
Patient voice
“Do you hear me?”
By admin
3 December 2021
Patient voice
My scars tell a story
By admin
24 November 2021
Patient voice
Hannah, Me and NCSE
By admin
10 November 2021
Patient voice
Cavernous malformation and the Breaking Barriers Initiative
By admin
5 November 2021
Patient voice
Please don’t call my son a patient
By admin
3 November 2021
Patient voice
Mum of four children living with disabling rare neuromuscular disease GNEM raises awareness for foundation aiming to find a cure
By admin
20 September 2021
Patient voice
Ataxia and us – Louise and Karls’ Story
By admin
20 September 2021
Patient voice
World Hepatitis Day – Krista’s journey with drug-induced autoimmune hepatitis
By admin
26 July 2021
Patient voice
Martha Harlam is on a mission and has high hopes for the future of ataxia
By admin
31 March 2021
Patient voice
Engagement through social support
By admin
29 January 2021
Patient voice
Achalasia Action is shining a spotlight on a rare disease of the oesophagus: achalasia
By admin
15 July 2020
Patient voice
National CMV Foundation – Amanda’s story
By admin
24 June 2020
Patient voice
EB World Congress—building on momentum and strength in numbers for epidermolysis bullosa
By admin
27 April 2020
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