RARE News

RARE News

Dyne Therapeutics and CureDuchenne partner to give the gift of mobility to two local families

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30 August 2023

RARE News

Million Dollar Bike Ride pilot grant program request for applications

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24 August 2023

RARE News

NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne

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16 August 2023

RARE News

IGA issues position statement on non-comparable medicines

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15 August 2023

RARE News

Double dose of suffering: how the war in Ukraine has affected patients with rare diseases

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14 August 2023

RARE News

Landmarks illuminate pink and purple for National Eosinophilic Week

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4 August 2023

RARE News

Pulitzer Prize-winning journalist Amy Dockser Marcus and Rebel Health author Susannah Fox to deliver keynotes at 12th annual RARE Advocacy Summit

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19 July 2023

RARE News

RARE Health Equity Forum seeks to put ideas into action

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12 July 2023

RARE News

Rare disease patient advocates gather in San Diego for a week of events to connect, learn, and empower

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7 July 2023

RARE News

New online course for medics launched today: exploring mental health and rare disease

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4 July 2023

RARE News

Sickle Cell Disease Association of America teams with MedicAlert Foundation to improve emergency outcomes during sickle cell crises

By admin

28 June 2023

RARE News

102,000 newborns could be saved every year if proper screening were in place – celebrating International Neonatal Screening Day

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28 June 2023

RARE News

Rare Care Centre Australia impact report

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26 June 2023

RARE News

Pioneering polar adventurer and charity CEO of The Muscle Help Foundation charity to be awarded MBE for services to people with muscular dystrophy

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26 June 2023

RARE News

An important milestone for the Duchenne community

By admin

23 June 2023

RARE News

Charity survey shows 60% of people with PSP and CBD are misdiagnosed

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17 June 2023

RARE News

Cure Mito Foundation launches resource on Leigh syndrome

By admin

9 June 2023

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