RARE Youth Project
It's a RARE Revolution Youth Take-Over!
Here at Rare Revolution we are passionate about providing a platform where rare disease can find a safe voice in a language that everyone can understand, making it truly accessible. With over 85% of rare diseases occurring in childhood, we felt it was time to provide a platform to allow their rare voices to be heard. To this end we are pushing the boundaries and leading in information innovation, teaming up with part of the RareTogether initiative developed by the British Paediatrics Surveillance Unit (BPSU) and Birmingham Children's Hospital, Rare Disease Centre, to create this very special project.
Support our Youth Team
The project is being funded by our proud sponsors and via our online crowdfunding campaign. We would love your support to help give these children their voice. Please support and share our campaign.
Meet our 2017 Youth Editorial Team
Meet our diverse youth editorial team who are staging a Rare Revolution take-over and empowering RARE children and young people by giving them their voice. While their conditions do not define them, these young people will be using this experience to throw a spotlight on their own conditions as well as that of their rare peers.