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The following downloads have been created by our RARERevolutionaries Community as a collaborative body of work, harnessing the collective voices of our diverse community of patients, advocates and charities to share their joint voice on the issues that matter to them. All files can be downloaded straight to your device for printing, and for ease of sharing via email or across your social media channels. We ask you to please READ, LEARN, SAVE, PRINT and SHARE and help us turn to the tide for those living with rare disease.
Top 10 Tips for RARE Healthcare Providers
Attending countless hospital and medical appointments can be exhausting, demoralising, fraught with anxiety and at times tedious for families living with rare disease. Whether it is a first appointment or part of a long-standing patient - clinical relationship, here are the Top 10 Tips according to our community, to help make the process that little bit easier.
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- RARE RESOURCES -
The following resources are supplements created in partnership with 3rd party rare disease stakeholders, which we are delighted to share for your interest and information.
Please be advised that reproduction, copying or distribution of the above RARE RESOURCES is strictly prohibited without our written permission.