- DIGITAL DOWNLOADS -

Download the APP for RARE Revolution Magazine on the Move 

No need to give the APP Store or GooglePlay access to your contacts, nor pay any download fee! 
To get our FREE APP simply follow the link or QR Code below, to access all our editions, blogs and content on the move on any mobile device.
Please don't forget to allow notifications so you never miss an issue!
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DOWNLOAD HERE via the Link or QR Code: 
https://rarerevolutionmagazine.beezer.com/

Need help installing?
Click `How to Guide`  for Android and Apple 

- READ, LEARN, SAVE, PRINT & SHARE -

The following downloads have been created by our RARERevolutionaries Community as a collaborative body of work, harnessing the collective voices of our diverse community of patients, advocates and charities to share their joint voice on the issues that matter to them. All files can be downloaded straight to your device for printing, and for ease of sharing via email or across your social media channels. We ask you to please READ, LEARN, SAVE, PRINT and SHARE and help us turn to the tide for those living with rare disease. 

Top 10 Tips for RARE Healthcare Providers

Attending countless hospital and medical appointments can be exhausting, demoralising, fraught with anxiety and at times tedious for families living with rare disease. Whether it is a first appointment or part of a long-standing patient - clinical relationship, here are the Top 10 Tips according to our community, to help make the process that little bit easier.

Please READ, LEARN, SAVE, PRINT & SHARE

Bereavement Advice - Navigating RARE Grief

​We reached out to our RARE community to ask families who have suffered the loss of a family member, to complete a short survey. We have compiled their responses to create two downloadable resources. Navigating RARE grief - offers guidance on how to best support grieving families and how to start a conversation about bereavement.

​Please READ, LEARN, SAVE, PRINT & SHARE

​Bereavement Advice - Living with RARE Grief

Insights from our RARE Revolutionaries community about how to find a new normal and strategies for living with RARE grief, based on our community survey with advice for those currently on their own personal journey with grief. 

​Please READ, LEARN, SAVE, PRINT & SHARE

10 Top Tips for ​RARE Employees

Landing your dream job when living with a rare disease, or with care-giver responsibilities can be daunting and arduous. Our RARE Revolutionaries community have a wealth of experience to share on this matter, and here are their top tips for getting and keeping that dream role.

Please READ, LEARN, SAVE, PRINT & SHARE

10 Top Tips for ​RARE Employers

Creating an inclusive workplace and company wide culture is more than just writing a mission statement of buzz words. Together with HR consultants, Dakota Blue Consulting, here are our top tips for being an inclusive employer fit for our talent rich RARE community.
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Please READ, LEARN, SAVE, PRINT & SHARE

- RARE RESOURCES -

The following resources are supplements created in partnership with 3rd party rare disease stakeholders, which we are delighted to share for your interest and information.   

Please be advised that reproduction, copying or distribution of the above RARE RESOURCES is strictly prohibited without our written permission.