Findacure – Using the power of experience and knowledge to help rare disease charities realise their goals
Don’t Reinvent the Wheel - The 2018 Findacure
Wendy Horrobin, co-founder of the Norrie Disease Foundation and a 2017 peer mentoring graduate, was kind enough to share her experience on the scheme with us.
“We were thrilled to learn that we had secured Kamlesh as our mentor as we were particularly interested in working with someone with a medical background. Our year together took off at a mighty pace. We set and achieved our peer mentoring objectives ahead of time, which included setting our charity objectives, registering as a charity, establishing an NDF medical advisory board, set up the NDF website and the NDF launch, and establish research into hearing loss under Professor Maria Bitner-Glindziciz's team at UCL Great Ormond Street Institute of Child Health (funded by Newlife and Sparks).
“Having a mentor helps you prioritise work, manage your time more effectively, and become more confident in reaching out for help. Kamlesh's support, patience, and advice was invaluable in getting the NDF to where we are today, and his words of wisdom are frequently called upon as we grow the charity.”
Anyone is welcome to join the programme and benefit from this one-to-one support. Mentees may be a newly formed group looking to secure charitable status or a long-formed charity embarking on a new project. The ideal mentee will be motivated and have a clear set of goals for the year ahead.
Alternatively, if you have an interest in rare diseases, expertise in business management, patient groups, charities, or consultancy and are keen to share your knowledge with others, why not apply to become a mentor? Mentoring can be daunting initially, but many find that simply acting as a sounding-board and strategy-checker is invaluable to their mentees. Mentors get a lot of satisfaction from helping patient groups in these ways and it is a wonderful way to develop and demonstrate your leadership skills.
If you would like to learn more about the scheme or apply to join the 2018 cohort, please visit www.findacure.org.uk/peer-mentoring-2018. Feel free to contact the Findacure team with any questions before the 10 January deadline and to discuss the programme in the Rare Revolution community where you will find some of our graduates.
Rare Revolution Editor