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RARE INSIGHTS

DMDD study update highlights striking outcomes

27/4/2017

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Our Clinical Spotlight in the Winter 16 Ultra-Rare Edition (issue 002, page 7) was a fascinating read. The article explained the role that mice embryos are playing in improving our understanding of human gene function, and how this data is being shared in a collaborative approach internationally.

We were interested to learn this month when we caught up with Dr. Jenna Lane of DMDD, of the scientific outcomes that this study if throwing up, some of which have big implications for rare disease.


To read their full update and learn more visit here.
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Become #CorporateFriends with RARE?

24/4/2017

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Our latest Spring Edition is all about celebrating the positive relationships between rare disease charities and the corporate world by looking at the value that these can bring to the patient front line, as well as the long term disease prognosis.  

But we know that not every business organisation can invest funds or expertise into supporting RARE. So...

We have a very simple way that EVERY organisation CAN support rare disease. It only takes a few minutes and in addition to showing your support to those affected by rare disease (by helping us raise awareness and promote education), you might also be directly connecting a member of your staff with a vital resource.

With 1 in 10 (US) and 1 in 17 (UK) people affected by rare disease this is more relevant to your business that you realise.

Please help us reach our target of 100 companies pledging a #rarerevolution and becoming #corporatefriends

All you need to do:

1) Make our free rare disease resource (link below) available to your employees via your website or internal communications and let them know they can free subscribe for future issues at www.rarerevolutionmagazine.com; and

2) Tell us when you have done this so we can can say THANK YOU!!
and don't forget to let us know any other ways you support you rare employees via email or social media, tag #corporatefriends and #rarerevolution
 
http://edition.pagesuite.com/html5/reader/production/default.aspx?pubname=&edid=3044f847-4cb4-49f8-9820-7385c5d3d34c
 
www.rarerevolutionmagazine.com
email: editor@rarerevolutionmagazine.com 

Thank you for joining the #RareRevolution

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Rare Revolution is published by NRG Collective, a not-for-profit media company specialising in rare disease content
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  • Home
  • Rare Revolutionaries
    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
    • Our Corporate Friends
  • Blog
  • Back Issues
  • #RareYouthProject
    • RYP Blog
  • The People of RARE
    • CEO Series
    • PEO Series
  • APP & Downloads
  • Media