Making the RARE voice heard
To read their full update and learn more visit here.
Our latest Spring Edition is all about celebrating the positive relationships between rare disease charities and the corporate world by looking at the value that these can bring to the patient front line, as well as the long term disease prognosis.
But we know that not every business organisation can invest funds or expertise into supporting RARE. So...
We have a very simple way that EVERY organisation CAN support rare disease. It only takes a few minutes and in addition to showing your support to those affected by rare disease (by helping us raise awareness and promote education), you might also be directly connecting a member of your staff with a vital resource.
With 1 in 10 (US) and 1 in 17 (UK) people affected by rare disease this is more relevant to your business that you realise.
Please help us reach our target of 100 companies pledging a #rarerevolution and becoming #corporatefriends
All you need to do:
1) Make our free rare disease resource (link below) available to your employees via your website or internal communications and let them know they can free subscribe for future issues at www.rarerevolutionmagazine.com; and
2) Tell us when you have done this so we can can say THANK YOU!!
and don't forget to let us know any other ways you support you rare employees via email or social media, tag #corporatefriends and #rarerevolution
Thank you for joining the #RareRevolution
Rare Revolution Editor