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RARE INSIGHTS

Making our RARE voices heard

Is well meaning always well meant?

12/7/2016

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A poignant blog - but what are your experiences?

How do you cope with misguided or unwanted attention?

Have you developed some quick `go to` strategies to cope with these kind of situations?
​https://teddingtontrust.wordpress.com/2016/02/11/is-well-meaning-always-well-meant/
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Rare Education - The Good, The Bad and the Ugly

5/7/2016

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Accessing education at any level from nursery to further education is a complex minefield to navigate when you live with a rare condition. There is finding the right placement, statutory statements and care plans, funding streams, personal assistance, risk assessments, adaptations, specialist equipment, staff training, peer engagement, social worker engagement and `reviews`... and that's all before the student sets foot through the door.

Some schools get it right almost all of the time, some just about get by and others can fail disastrously leaving parents overwrought and children trapped with limited opportunity and feeling isolated.

Then there are those who fall through the net due to being in that undiganosed limbo, and in some cases are entirely unable to access appropriate education.

What are the biggest challenges facing parents and young adults today in the journey through specialised or mainstream education?

We would love to hear your RARE Education story x
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BREAKING NEWS!!

2/7/2016

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Rare Revolution Magazine launches it's first edition in September 2016

Visit www.rarerevolutionmagazine.com for your free subscription

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Rare Revolution is published by NRG Collective, a not-for-profit media company specialising in rare disease content
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  • Home
  • Rare Revolutionaries
    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
    • Our Corporate Friends
  • Blog
  • Back Issues
  • #RareYouthProject
    • RYP Blog
  • The People of RARE
  • APP & Downloads
  • Media