Making the RARE voice heard
Max Appeal highlights the need for early diagnosis
Among the most powerful presentations of the Summit was the keynote panel moderated by physician anesthesiologist and now NORD Education Advisory Committee advocate, Dr. Anita Gupta. Dr. Gupta reflected upon her journey as a rare disease survivor, “Nobody cares how much you know until they know how much you care.”
Nobody cares how much you know until they know how much you care.
Dr. Anita Gupta
It has been tremendous to see gene therapy come full circle in my lifetime, to see its ability to transform different disease communities, far beyond what we thought was initially possible almost three decades ago
I don’t remember when I realised what my hearing problem was, but over the years, I got better at understanding how my ears work. It’s like the sound of your voice goes into my ear, then up to my brain, but then the words get lost
Rare Revolution Editor