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RARE INSIGHTS

Can you help give Liberty a rare voice?

2/5/2017

4 Comments

 

Would you like to be part of this innovative and exciting project to deliver a special RARE Kids edition of Rare Revolution Magazine?

Please take a few minutes to listen to 12 year old Liberty tell us why she is applying to be our Junior Editor or blogger.
If you would like to sponsor or support this project and give Liberty and other young rare disease patients, carers and siblings a strong and powerful voice to be heard then we would love to hear from you.

Contact us now to discuss this wonderful project:

Rebecca:    advertising@rarerevolutionmagazine.com 
Nicola:        editor@rarerevolutionmagazine.com


The vision
An annual rare disease magazine written for children by children!


Here at Rare Revolution we are passionate about providing a platform where rare disease can find a safe voice in a language that everyone can understand, making it truly accessible. To this end we are pushing the boundaries and leading in information innovation and are teaming up with part of the RareTogether initiative developed by British Paediatrics Surveillance Unit (BPSU) and Birmingham Children's Hospital, Rare Disease Centre to create a very special project.

We are opening up our magazine and letting the children take over once a year to produce an accessible, informative and engaging rare disease publication created specifically for children - by children!
Our vision is to create a magazine where children can find information relevant to them, tell their stories in a safe environment, ask questions and take ownership of their RARE stories and experiences.

Our target audience is 8 to 18 years old.
With a mix of professional and peer content we will enlist the help of a team of RARE Children to work with us on this special publication. From assistant editor, columnist, blogger, journalist, video content and photographer we want this to be a truly kid centric affair. Our aim is to engage and enlist our child team to help us with content that is relevant to them in the voice that matters - THEIRS!

Join the #RareRevolution

Rare Revolution Magazine is a free subscription, quarterly digital magazine. Free subscribe to receive our latest and future issues at www.rarerevolutionmagazine.com

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4 Comments
Lauren Poncsak
3/5/2017 14:29:49

Liberty is one of my students in Indiana. She is very passionate about her brother and sharing his story. She is a very hard worker and would make an excellent junior editor. I wish I has more students with her passion and work ethic!

Reply
Nicola Miller - Rare Revolution Editor link
3/5/2017 19:16:04

Thanks so much for your message Lauren. We also thought Liberty was just fantastic! It is clear she is brimming with passion and talent x

Reply
Oliver Ludlow-Araque
3/5/2017 18:57:04

My son Oliver is 10 years old, lives in the UK and has a rare gastric disease called eosinophilic enterocolitis as well as esophageal motility disorder. He is a keen writer and would be interested to learn more about this.

Thanks,

Angelica Araque-Ludlow

Reply
Nicola Miller - Rare Revolution Editor link
3/5/2017 19:22:58

Hello Angelica, Great to hear from you. It's super simple for Oliver to apply. All he needs to do is drop me an email to editor@rarerevolutionmagazine.com with a short bio about himself and what role he would like to be considered for.

I.e. blogger/journalist/photographer etc. Or if he would prefer he can do a short video and email or private message via our facebook page.

The deadline is 5th May, after which our team will review all applicants and their skils and assign roles on our Junior Editorial Team.

We look forward to hearing from him.

Nicola

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Rare Revolution is published by NRG Collective, a not-for-profit media company specialising in rare disease content
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  • Home
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    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
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