RARE INSIGHTS |
Making the RARE voice heard
Rare disease charity the AKU Society are hosting a comedy night at the Hot Water Comedy Club on June 29th to fundraise for those who have the rare disease alkaptonuria (AKU).
With a strong presence in Liverpool, the AKU Society was founded by Liverpool man Robert Gregory in 2003. Patients who have AKU regularly visit the Royal Liverpool University Hospital where the National Alkaptonuria Centre is based; to receive treatment for their disease and access to an innovative new drug. The comedy night will raise money to fund an International Patient Workshop, which will support and benefit people with AKU from all over the world. Robin Marshall, Admin & Events Officer from the AKU Society says: “The Stand Up For AKU Comedy Night will be a fantastic event with some great local Liverpool comics performing throughout the night. With close ties to Liverpool with the National Alkaptonuria Centre being based at the Royal Liverpool University Hospital, we are very excited to put on an event in the heart of the city.” “The money raised will go towards putting on a Patient Workshop next year. These workshops are an invaluable way for patients to hear from world leading experts on AKU, and give them a chance to speak to other AKU patients.” AKU patient Maureen McClure describes Patient Workshops as “a great way to meet people and learn more about AKU”. Tickets for the event are £12, please visit the event page on the Hot Water Comedy website to purchase: https://www.hotwatercomedy.co.uk/event/491/#event
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