Dan Jeffries reads Me, Myself & Eye exclusively for RARE Revolution, Digital Disease Spotlight

Dan Jeffries is the genius behind the intriguing and chuckle worthy memoir delving deep into his life as someone living with one of the worlds rarest medical conditions, Wyburn-Mason syndrome. Dan had just gotten to grips with his first diagnosis when he was thrust into the world of Acromegaly yet another of the worlds rarest medical conditions! Dan has taken his diagnosis and turned it into an inspiring and insightful read to raise awareness and provide support for those going through a similar experience. We are honoured to have Dan reading an extract from his book for this Digital Disease Spotlight campaign! 

​Told through an innovative new approach that combines the traditional reading experience with modern technology, Me, Myself & Eye really lets the reader delve into Dan’s life story. Use your smart-phone, tablet or computer to look at family photos, medical documents, scans, videos and even listen to music he’s written over the years. Me, Myself & Eye is a memoir that is both fascinating and insightful, told with a fresh, honest and unique voice.

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You can listen to chapter 31 of Me, Myself & Eye, 'Showtime' recorded exclusively for Rare Revolution Magazine:

If you liked this you can listen to the full audio book version of Me, Myself & Eye narrated by the author himself or perhaps you fancy a more hands on experience with the interactive ebook and if none of those take your fancy, you can get Me, Myself & Eye in good old fashioned print! 

​​​OK so I may not be Nigel Havers but – if you like your audiobooks – I think you’ll love this one. And we’ve got two ways in which you can indulge. Over 12 hours of pure audio bliss. Use the Book Content whilst you listen. And all narrated by yours truly.

Audio book

​I wanted the eBook to integrate the content more. I contacted an eBook designer specialist, a guy called Paul Drummond, and explained what I was after. He fully understood and we set about producing an interactive eBook.

EBOOK

There was no question about it: I wanted a physical book. Even though I’m not a big reader myself, I knew that having something physical to hold, to sign, to look at on the shelf was important, and just as important for the reader too.

Paperback

If you like the sound of Dan and want to hear more you can listen to his podcast series featured on the AcroTales platform in which Dan chats with Acromegaly patients about their personal journeys, you can hear some incredible stories and get to know life with Acromegaly. 

AcroTales podcast

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​​For Support and to find out more about acromegaly from our Digital Disease Spotlight campaign you can read and listen to Dan Jeffries story to find out how he was inspired to create something positive from his diagnosis. Kara LaFrance tells us how not giving up is the only option when it comes to her personal battle with acromegaly. We also speak with Dr Niki Karavitaki, Senior Clinical Lecturer in Endocrinology and Honorary Consultant Endocrinologist at the Queen Elizabeth Hospital Birmingham where she co-leads the Pituitary Service and Pituitary Multi-Disciplinary team (MDT) to gain her insights and perspective of the rare condition.

You can also read Our RARE Book review by David Rose, Loving large: A Mother’s Rare Disease Memoir is an insight into one rare disease family’s diagnostic odyssey. This book follows the journey of Patti Hall and her son with a rare form of acromegaly, called gigantism. Living life with a rare disease is complicated and getting the diagnosis is only a small part of that journey, if anything, it’s just the start.

Dan's Story

Understanding Acromegaly

Support

Kara LaFrance

Book Review

Dr Niki Karavitaki