11094435908632364994308624

  Rare Revolution Magazine
  • Home
  • Rare Revolutionaries
    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
    • Our Corporate Friends
  • Blog
  • Back Issues
  • #RareYouthProject
    • RYP Blog
  • The People of RARE
    • CEO Series
  • APP & Downloads
  • Media

RARE INSIGHTS

FSD call for innovative research projects in advanced therapies for Dravet syndrome

19/11/2020

0 Comments

 
Picture
Picture

Dravet Syndrome Foundation Spain​

​Submit your Letters of Intention and apply to our call for Innovative Research Projects in Advanced Therapies for Dravet syndrome by December 6, 2020

 

Dravet Syndrome Foundation Spain was created with the primary goal of removing the barriers that prevent research on Dravet syndrome from advancing, as well as encouraging the search for effective treatments that can mitigate or even cure the disease.
​
Therefore, FSD places a high priority on funding research that has a clear path to genetic understanding, clinical application and/or therapeutic development.
 
Dravet syndrome, also known as severe myoclonic epilepsy of infancy, is a condition of genetic origin which falls within the pathological family of channelopathies, as approximately 80 percent of affected patients have a mutation in the SCN1A gene which encodes a sodium channel (Nav1.1) essential for the proper functioning of the brain. This syndrome begins in the first year of life, with seizures triggered by fever, followed by drug-resistant epilepsy. In addition, it causes serious delays in cognitive, motor and speech development, as well as behavioural problems.
  • Through this call, we seek to promote fundamental, pre-clinical and clinical research aimed at advanced and innovative therapies.
  • Due to the genetic nature of this disease, eligible areas of study in this open call include, among others, gene therapy of viral vectors, gene therapy of non-viral vectors, and synthetic biology for the development of disease-modifying molecules.
  • Specifically, the call focuses on exploratory projects of a preliminary nature and/or which study therapeutic aspects for Dravet syndrome not yet covered, in order to help scientists lay the foundation for a long-term research strategy.
We hope to receive projects of extraordinary quality that ultimately aim to improve the quality of life of people living with Dravet syndrome. We encourage all research groups to send us their proposals!
 
*The period for submitting projects is NOW OPEN*

All details about the call, including rules, eligibility criteria, deadlines and the online submission platform can be found by clicking the find out more link below:
FIND OUT MORE
Picture

0 Comments

Your comment will be posted after it is approved.


Leave a Reply.

    Author

    Rare Revolution Editor

    Archives

    December 2020
    November 2020
    October 2020
    September 2020
    August 2020
    July 2020
    June 2020
    May 2020
    April 2020
    March 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    June 2018
    May 2018
    April 2018
    February 2018
    January 2018
    November 2017
    October 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    October 2016
    September 2016
    July 2016

    Categories

    All

Rare Revolution is published by NRG Collective, a not-for-profit media company specialising in rare disease content
Contact Us
Editor:  
   editor@rarerevolutionmagazine.com
​Advertising: rstewart@rarerevolutionmagazine.com

  • Home
  • Rare Revolutionaries
    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
    • Our Corporate Friends
  • Blog
  • Back Issues
  • #RareYouthProject
    • RYP Blog
  • The People of RARE
    • CEO Series
  • APP & Downloads
  • Media