Improving UK genetic test reports

​The Winton Centre for Risk and Evidence Communication (https://wintoncentre.maths.cam.ac.uk/) are working with representatives from the National Health Service, Association for Clinical Genomic Science, and the University of Cambridge to improve current genetic test reports.

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Current genetic test reports are written for genetic experts to understand and then relay back to patients. We are working on creating a report that is friendlier to non-geneticists. This is so that patients and other general healthcare workers can be more involved with their medical decision-making.

We are recruiting participants to help us find out which reports, or features of reports, are good/bad so that together we can design a new one that is understandable by anyone who reads it. All that we require is your opinion and a small amount of your time.
 
Who we are looking for

•   Participants aged 18 and over 
  

What we will do:

• Focus group sessions, 1-to-1 interviews, or online surveys. (Your choice!)       Before any sessions there will be a short questionnaire to complete
• Focus groups will involve an interactive session led by a researcher with 4 to 8 participants discussing and answering questions about features of reports (which will be provided during the session)
• Interviews will be exactly the same but 1-to-1 (online) with a researcher
• Online surveys will present a report and questions to be answered

 
When will we do it:

• Focus groups will be held between 14th-16th and 29th-31st of August
• Interviews will be held between 3rd-13th and 21st-28th of August
• Evening times outside of working hours will be available
• Online surveys will be sent out 5th-10th September

 
Where we will do it:

• Focus groups will be held at the Centre for Mathematical Sciences (http://www.cms.cam.ac.uk/visiting/ free parking is provided)
  
• Interviews will be conducted online via video call service (Skype, appear.in, Facetime) or phone call
  
• Online surveys can be completed wherever you have an Internet connection
  

 
What do you get?

• An opportunity to contribute towards national genetic test report design
  
• £10 per hour for focus groups and interviews (sessions will last a maximum of 1.5 hours)
  
• Travel expenses up to a maximum of £20 (receipts must be provided)
  
• Survey participants are entered into a raffle for a £100 Amazon voucher
  

 
If you are interested in participating then please email Harry Gray (hg384@cam.ac.uk) with your preference of focus group/interview/survey (if you have one) who will get in contact to arrange exact times/dates.