Photo credit: #ToyLikeMe, Photographed by Beth Moseley
Here at Rare Revolution Magazine, giving patients access to information and a place to have their voice heard is at the core of what we do.
As our third edition is just over a month away from hitting inboxes around the world we have been overwhelmed by your responses and support and astounded at the number of people and organisations who want to be heard.
We love Rare Innovation and when Richard Lynn of the BPSU planted a seed when he met our Co-Founder Rebecca Stewart at the Cambridge Rare Disease Network in October we couldn’t ignore it, and we have since teamed up with the Rare Together Initiative of the British Paediatrics Surveillance Unit (BPSU) and Birmingham Children’s Hospital, Rare Disease Unit to push the boundaries of information innovation.
We are opening up our magazine and letting the children take over once a year to produce an accessible, informative and engaging rare disease publication created specifically for children – by children!
With a mix of professional and peer content we will enlist the help of a team of Rare Children to work with us on this special publication. From assistant editor, columnist, blogger, journalist, video content and photographer we want this to be a truly kid centric affair.
Ahead of our official Launch on the 25th February at The Birmingham Children’s Hospital Marvellous Superstar’s Rare Disease Party we are inviting interested parties to view our sponsorship proposal and give them an opportunity to be involved in this ground-breaking project from the outset.
Join our #rarerevolution and support us to support RARE children!
For more information contact Rebecca at firstname.lastname@example.org
Rare Revolution Editor