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RARE INSIGHTS

Making our RARE voices heard

SMi's 9th Annual Orphan Drugs & Rare Diseases

11/9/2019

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RARE Event
Picture

Evaluating the Key Challenges to Advance Commercialisation & Patient Access

Holiday Inn Kensington Forum, London, UK
Workshop: 17 October 2019
Conference: 15 - 16 October 2019
www.orphandrugs.co.uk/rrm
​
As the co-chairs of the 9th Annual Conference on Orphan Drugs & Rare Diseases, SMi are very pleased to invite you to attend this event, which will be taking place on 15th and 16th October in London.
 
This conference will bring together a broad spectrum of experts from across the orphan drug world. The two-day compact agenda will offer a series of presentations, through which you will gain key insights into current trends and innovations in orphan drug development, using real world case studies to illustrate challenges and opportunities.
 
The rare and ultra-rare disease landscape is constantly changing as new diagnostic and therapeutic technologies emerge and partnerships are developed to address patient access and funding issues. At the conference, speakers from patient organisations, pharmaceutical R&D companies, health technology assessment groups, and others will lay out the current landscape and address how the orphan drug space will develop as the century continues.
 
Delegates will gain invaluable insights on major topics including:
  •  International perspectives on state-of-the-art rare disease research and development
  • Patient perspectives on the challenges of navigating the path to diagnosis and encouraging research interest in rare diseases
  • Cutting edge innovations with emerging technologies, including stem cell therapy and artificial intelligence
  • Appraisal of real-world value for new therapies in the orphan drug arena.
 
Following the conference there will be a half-day workshop where delegates will deep dive into strategies for accelerating patient access to orphan drugs, addressing issues, opportunities and barriers, that are met when developing a product for patients with rare diseases.
 
To view the full details of the 2-day conference agenda, half-day workshop and the expert speaker line-up, please view the brochure here www.orphandrugs.co.uk/rrm

HOW TO REGISTER
For more details and to register visit: www.orphandrugs.co.uk/rrm
 
Email the completed booking form from the brochure and email it to the events team at: events@smi-online.co.uk
 
If you are interested in joining SMi as a sponsor/exhibitor, there are still a few sponsor packages available to suit your business needs, please contact Alia Malick, Director on +44 (0) 207 827 6168 today or email amalick@smi-online.co.uk
 
Mike Page one of the co-chair's of the conference, looks forward to personally welcoming you and having fruitful discussions at this must-attend event in London in October.
 
Co-Chairs for 2019 Conference:
  • Mike Page, Executive Director Global Regulatory Affairs, Alexion Pharmaceuticals
  • Rick Thompson, CEO, Findacure
 
#SMiOrphanDrugs
 
Please share the event details with your colleagues who may also benefit from attending the conference!
 
www.orphandrugs.co.uk/rrm

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