11094435908632364994308624

  Rare Revolution Magazine
  • Home
  • Rare Revolutionaries
    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
    • Our Corporate Friends
  • Blog
  • Back Issues
  • #RareYouthProject
    • RYP Blog
  • The People of RARE
    • CEO Series
    • PEO Series
  • APP & Downloads
  • Media

RARE INSIGHTS

SOBI  “Power up Young Rare Voices” – Could You?

29/8/2018

0 Comments

 
Picture
As part of its commitment to supporting people with rare diseases, Cambridgeshire-based speciality healthcare company Sobi are continuing their support of the #RareYouthProject, a year-long programme that works with children and young people affected by rare disease.
​
Launched in 2017 by independent not-for-profit publishers NRG Collective Ltd, creators of Rare Revolution magazine, this annual programme works with the young rare community to ensure their voices are heard through the creation of their own dedicated Youth Magazine.
Giving complete control of topics, assignments and design to the young editorial team The Rare Revolution Team in collaboration with the RareTogether project support all aspects of their journey to support the successful launch of their final publication.
The 2017/18 Youth Team out and about on assignment
We are proud to continue our support of this great initiative, as part of Sobi’s commitment to the rare disease community. It is wonderful to see such a brilliant 2017/2018 Rare Youth issue of the magazine, and to hear from the vital and vibrant young voices which make up the community. We would encourage as many young people as possible to get involved in the coming year, to share their stories, and continue to build on the success of the #RareYouthProject
Neil Dugdale, General Manager, SOBI UK and Republic of Ireland
The #RareYouthProject recently celebrated Great Ormond Street Hospital hosting the 2017/18 Rare Youth Edition through all 415 of their bedside interactive screens allowing an extra 40,000 young people each year to have access to this resource.
http://www.rarerevolutionmagazine.com/blog/great-ormond-street-hospital-join-the-rare-revolution
“The project’s aim is not purely about ‘powering up young voices’ but also provides participants with valuable real-life work experience often not available to young people with complex health needs as well as an opportunity to meet other young people who share their challenges. We are thrilled to have Sobi’s support with our 2018/19 project.” Rebecca Stewart CEO NRG Collective Ltd.

The 2017/18 Rare Youth Issue can be read by clicking the front cover below.
Picture
If you would like to find out more about supporting this year’s #RareYouthProject please contact Rebecca on rstewart@nrgcollective.co.uk

About NRG Collective Ltd. 
An independent not for profit company NRG Collective Ltd are dedicated to making rare voices heard. Through their free publications Rare Revolution and the Rare Youth Edition they are raising awareness and providing valuable information for the whole rare disease community.

About Sobi
Sobi is an international rare disease company dedicated to providing access to innovative treatments that make a significant difference for people with rare diseases. We have two business areas: Haemophilia and Specialty Care. Our research and product portfolio is primarily focused on haemophilia, inflammation, and genetic and metabolic diseases.
The United Kingdom and Republic of Ireland team is based in Cambridge and have been rated as the best company in Haemophilia in the UK through an annual independent survey in 2016 and 2017 and one of the UK’s great places to work in 2017.
0 Comments

Your comment will be posted after it is approved.


Leave a Reply.

    Author

    Rare Revolution Editor

    Archives

    February 2021
    January 2021
    December 2020
    November 2020
    October 2020
    September 2020
    August 2020
    July 2020
    June 2020
    May 2020
    April 2020
    March 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    June 2018
    May 2018
    April 2018
    February 2018
    January 2018
    November 2017
    October 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    October 2016
    September 2016
    July 2016

    Categories

    All

Rare Revolution is published by NRG Collective, a not-for-profit media company specialising in rare disease content
Contact Us
Editor:  
   editor@rarerevolutionmagazine.com
​Advertising: rstewart@rarerevolutionmagazine.com

  • Home
  • Rare Revolutionaries
    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
    • Our Corporate Friends
  • Blog
  • Back Issues
  • #RareYouthProject
    • RYP Blog
  • The People of RARE
    • CEO Series
    • PEO Series
  • APP & Downloads
  • Media