Making the RARE voice heard
On Rare Disease Day 2018 Students4RareDiseases is becoming Medics4RareDiseases. What may seem like a small word change signifies a big step for our organisation. S4RD was established by 5 medical students from Barts and The London in 2013 with the help of the LSD Collaborative Group and the Genzyme PALs Award. In the subsequent four years we have grown a brand and developed relationships with medical students, clinicians, HCPs, patient groups, research charities, and industry. It’s been hugely exciting to see people respond so positively to our work and our aim.
M4RD is the next incarnation of S4RD
What’s staying the same?
We continue to support medical students in the UK and abroad with their efforts to spread the word about rare diseases. Next year we will be holding our symposium at The Royal Society of Medicine, London. However this year we’re having a pause while we prioritise the rebrand, restructure and helping a brilliant bunch of medical students at The University of Birmingham to hold a big event. More information about Patient Perspective on Rare Diseases on 1st March 2018 can be found on our website.
We found doctors in training felt that the word “students” excluded them from our events. We wanted to change this because we would like all clinicians to understand the unique and difficult circumstances faced by rare patients navigating the health care world. Although we focus is towards doctors and future doctors, we do like to hear from and work with ALL healthcare professionals.
Our aim remains the same:
We want to drive an attitude change towards rare diseases amongst medical students and doctors in training in order to improve the patient journey
Rare Revolution Editor