"The route symbolizes the journey my sons have made past three hospitals. The path will be revisiting memories through the time of an anxious, high-risk pregnancy. The final destination is the LUMC, the hospital where they were born. By acting appropriately, consulting well, and screening frequently, the fetal treatment team has ensured that we can now enjoy our sons. Our gratitude is great, and in collaboration with the TAPS Support Foundation, we have found a direct way to give 'something’ in return for the great work they do and to bring even more high-risk pregnancies to a successful conclusion.” said Mart Smit.
We are closing a turbulent period with this run, and we hope to open new doors with essential donations.
The biggest issue with twin research is a lack of awareness about the complications of twins and a lack of funding to continue rare disease research. Twin complications are overshadowed by the rarity and joy of having twins. This means that often the rare complications are overlooked, and awareness of diagnosis and treatment is vital.
Performing over 900 life-saving laser surgeries in the past 20 years, and with a 24-7 referral center with leading experts available for consultation, the LUMC saves the lives of twins across the Netherlands. Their expertise and innovation are recognized across Europe and the world. They are sought-after experts in their field, consulting worldwide on complex twin problems. Over three days, and 150 kilometers, Mart will use his epic run to raise vital funds to continue research into twins and their unique complications and raise awareness.
For more information about the TAPS Support Foundation please click the buttons below:
To learn about the parenting superpower series and to hear from our RARE Parents please use the buttons below:
To download our Top Tip for RARE Parents resources please click the button below:
Rare Revolution Editor