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RARE INSIGHTS

You be the book...

6/10/2016

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I have not long finished a Skype interview, for our Dec issue, and as always, it was an absolute honour.
 
We feel very privileged to be in a trusted position, where families can approach us about sharing their own unique RARE story. To sit and listen, to a mix of common shared struggles and unique emotional and physical challenges, is a privilege we don’t take lightly.
 
We look forward to putting a lot of love and commitment into turning this interview into a feature for our ULTRA RARE edition.
 
To quote the words of a song, which aptly reflect our vision of RARE Revolution Magazine:
 
“You be the book, I`ll be the binding,
You be the words, I`ll be the rhyming”  

Extract "That's Whats Up" Alex Ebert
Picture
Photo credit Copyright Nicola Miller 2016
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Rare Revolution is published by NRG Collective, a not-for-profit media company specialising in rare disease content
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  • Home
  • Rare Revolutionaries
    • Our Charity Partners
    • Revolutionaries Community
    • Join the Rare Revolution - Charities sign-up
    • Our Corporate Friends
  • Blog
  • Back Issues
  • #RareYouthProject
    • RYP Blog
  • The People of RARE
    • CEO Series
    • PEO Series
  • APP & Downloads
  • Media