I have not long finished a Skype interview, for our Dec issue, and as always, it was an absolute honour. We feel very privileged to be in a trusted position, where families can approach us about sharing their own unique RARE story. To sit and listen, to a mix of common shared struggles and unique emotional and physical challenges, is a privilege we don’t take lightly. We look forward to putting a lot of love and commitment into turning this interview into a feature for our ULTRA RARE edition. To quote the words of a song, which aptly reflect our vision of RARE Revolution Magazine: “You be the book, I`ll be the binding, You be the words, I`ll be the rhyming” Extract "That's Whats Up" Alex Ebert Photo credit Copyright Nicola Miller 2016
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