Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters to the editor
Medical
News
Patient voice
RARE employment
RARE parenting
RARE ramblings
RARE REV-inar
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
Latest Edition
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Charity & advocacy
Charity & advocacy
My journey with multiple sclerosis and advocacy
By admin
28 May 2021
Charity & advocacy
Personal circumstances lead the way to a passionate career in nephrology research
By admin
11 October 2020
Charity & advocacy
PTC Therapeutics’ 2020 STRIVE awards for Duchenne muscular dystrophy recognise four patient advocacy organisations
By admin
30 September 2020
Charity & advocacy
Scottish based liver charity PBC foundation celebrates success of its first global online event
By admin
29 September 2020
Charity & advocacy
CMT Research Foundation fighting to shorten the time to diagnosis and put CMT on the radar of pharma
By admin
24 September 2020
Charity & advocacy
A race against time
By admin
18 August 2020
Charity & advocacy
The Albinism Fellowship UK and Ireland are proud to support a campaign to end discrimination within international blind sport
By admin
5 August 2020
Charity & advocacy
“I Stay Home for RARE” financial assistance campaign launched by Living in the Light.
By admin
8 July 2020
Charity & advocacy
Kawasaki disease UK
By admin
1 July 2020
Charity & advocacy
Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease
By admin
29 June 2020
Charity & advocacy
Nystagmus awareness day – 20 June 2020
By admin
17 June 2020
Charity & advocacy
Welcome new boost for mums and dads of young children with albinism
By admin
11 June 2020
Charity & advocacy
Local charity thanks the north-east for the gift of time
By admin
5 June 2020
Charity & advocacy
My Little Lockdown Life created by Kate Read & Rebecca Atkinson
By admin
12 May 2020
Charity & advocacy
Making sense of the headlines: empowered and informed treatment choice in haemophilia
By admin
15 April 2020
« Previous
1
2
3
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset