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RARE Ophthalmology
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Charity partner news

Charity partner news

DEBRA launches £5m fundraising appeal to stop the pain of EB

By Rebecca Pender
16 November 2022

Charity partner news

Leading Muscular Dystrophy charity gives petrol heads a ‘driving experience of a lifetime’ as it continues its commitment to delivering life-changing wish-fulfilment experiences to children and young adults

By Rebecca Pender
26 October 2022

Charity partner news

The Student Voice Prize: an international essay competition raising the profile of rare disease

By Rebecca Pender
13 October 2022

Charity partner news

Teddington Trust and XPSG – coming together with a new identity for a new impact driven mission

By Rebecca Pender
1 July 2022

Charity partner news

Medics4RareDiseases joins forces with Bionical Emas to launch new online training

By Rebecca Pender
5 April 2022

Charity partner news

Myhre Syndrome Foundation awards $150,000 in grants

By Rebecca Pender
3 March 2022

Charity partner news

The urgent case for patient assistance funding

By Rebecca Pender
3 February 2022

Charity partner news

Cambridge charity launches crowdfunding campaign to raise £30,000 for the first global AKU registry.

By Rebecca Pender
9 November 2021

Charity partner news

What is HH? Carrie Fulcher tells her story of finally discovering that she had a hypothalamic hamartoma

By Rebecca Pender
30 October 2021

Charity partner news

BBS UK participates in BBS global day to support individuals affected by Bardet Biedl syndrome

By admin
25 September 2021

Charity partner news

Niemann-Pick UK are set to launch ‘Invisible Me’ campaign and short film ‘Invisible Manners’

By Rebecca Pender
14 September 2021

Charity partner news

Michael McGrath – CEO of The Muscle Help Foundation discusses academic research with University of Hertfordshire

By Rebecca Pender
13 August 2021

Charity partner news

Visual Snow Initiative: the charity on a mission to cure visual snow syndrome

By Rebecca Pender
12 July 2021

Charity partner news

All change at Genetic Disorders UK

By Rebecca Pender
2 June 2021

Charity partner news

It’s NOT Parkinson’s. Progressive supranuclear palsy and corticobasal degeneration

By Rebecca Pender
28 May 2021

Charity partner news

Non-profit partnership with Illumina aims to reduce the diagnostic odyssey for individuals living with a rare epilepsy

By Rebecca Pender
12 April 2021

Charity partner news

ShieldUs call to action for our learning disabilities community’s right to life

By Rebecca Pender
1 April 2021
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