RARE News

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

By admin

13 February 2023

RARE Ramblings

Richard’s RARE Ramblings: FEAR!

By admin

8 February 2023

RARE News

Shining the light on tube feeding

By admin

5 February 2023

Turning the tide for rare disease

A new year brings new opportunities: Global Genes – supporting patients, caregivers, advocates and organisations

By admin

1 February 2023

Industry Insights

“Developing positive change in how we diagnose, treat and care for patients with a rare disease.” Rhetoric or reality?

By admin

1 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

Turning the tide for rare disease

Medics 4 Rare Diseases: reframing rare disease – one Instagram story at a time

By admin

25 January 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

By admin

24 January 2023

RARE News

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By admin

20 January 2023

RARE News

Know your sickle cell trait status, according to new campaign

By admin

20 January 2023

RARE News

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By admin

19 January 2023

RARE News

Rare Disease Innovation & Partnership Summit

By admin

19 January 2023

Turning the tide for rare disease

Barriers to care in sickle cell disease: the reflections of La’Shardae Scott, social worker and RARE mother

By admin

18 January 2023

RARE News

Cell & Gene Therapy Summit 2023

By admin

18 January 2023

RARE News

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

By admin

18 January 2023

Patient voice

Wings of Fire: escaping the shadows of a rare disease that was undiagnosed for 25 years

By admin

11 January 2023

RARE News

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

By admin

6 January 2023

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