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RARE News
RARE News
SMA Europe launches its 12th call for research
By admin
3 April 2024
RARE News
Sickle Cell Disease Association of America promotes Kevin Amado Jr.
By admin
27 March 2024
Letters to the editor
How can we get the patient heard by the regulators?
By admin
27 March 2024
RARE REV-inar
Eight challenges in developing rare disease therapies
By admin
25 March 2024
RARE News
Rare Disease Day 2024 – Call for greater awareness of X-linked adrenoleukodystrophy and cerebral adrenoleukodystrophy
By admin
20 March 2024
RARE News
Rare disease advocates learn to accelerate therapeutic development at 9th RARE Drug Development Symposium
By admin
19 March 2024
RARE News
Alnylam launches Hereditary ATTR (hATTR) Amyloidosis campaign to help shorten diagnosis time
By admin
19 March 2024
RARE News
New primer highlights latest understanding of rare inherited disease alkaptonuria
By admin
19 March 2024
RARE News
DEBRA UK asks the British public to BE the difference for EB in 2024
By admin
19 March 2024
Industry Insights
Living well today: How do we make it happen for the rare diseases community?
By Rebecca Pender
13 March 2024
RARE News
Launching CamRARE’s ‘The Need for a RARE Patient Passport’ Report for Rare Disease Day
By admin
1 March 2024
RARE News
Coave Therapeutics Receives Grant from the ALS Association to Advance its CTx-TFEB Program as a Potential Treatment for All Forms of ALS
By admin
29 February 2024
RARE News
SMA Europe launches “Care for adults living with SMA in Europe: a benchmarking report.”
By admin
29 February 2024
Charity & advocacy
One in a million
By admin
28 February 2024
Patient voice
Raising a child with Hirschsprung’s disease
By admin
28 February 2024
Charity & advocacy
300 million colours of Rare: three patients and caregivers share their rare disease stories
By admin
28 February 2024
Science & tech
Beyond development: Overcoming market access challenges for rare disease treatment
By admin
28 February 2024
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