To find out more about the work of Rho, please visit;
www.rhoworld.com
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To find out more about the work of RARE. please visit;
www.findyourrare.com
Patrick's brother Dennis - his inspiration To find out more about the work of MediFind please visit;
www.medifind.com
The CHAMP1 Foundation's first family conference in June 2018
To find out more about the work of The CHAMP1 Foundation please visit;
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AuthorRARE Revolution on behalf of The Humans of RARE Archives
September 2020
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