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- EVENTS -
Connecting stakeholders and advancing meaningful dialogue is now more critical than ever to improving the lives of millions of patients and families around the world who are impacted by rare diseases. The 2020 NORD Rare Diseases and Orphan Products Breakthrough Summit will be presented as a virtual event on October 8 and 9, providing a safe, convenient forum for discussing the issues of greatest importance to the rare disease community now.
As we enter a new era in which technology in rare disease is accelerating, and with topics related to public health and drug pricing being top priorities in government during this pivotal time, we must act now to drive innovation, collaborate for better outcomes and assure access to care for all. Join NORD for two days of insights as we explore the life-changing experiences affecting people living with rare disease in this time of public health awareness.
As we enter a new era in which technology in rare disease is accelerating, and with topics related to public health and drug pricing being top priorities in government during this pivotal time, we must act now to drive innovation, collaborate for better outcomes and assure access to care for all. Join NORD for two days of insights as we explore the life-changing experiences affecting people living with rare disease in this time of public health awareness.
Why You Should Attend The 2020 NORD Summit
- Discussions of topics including the COVID-19 pandemic’s impact on the rare disease community, drug pricing, advancements in technology, tools for accelerating cures and more
- A blue-ribbon panel of public health experts, patient advocates, and industry leaders on how to build a stronger healthcare system from what we’ve learned this year
- Plenaries and breakout sessions that will focus on issues such as gene therapy and genome editing, the evolution of regulatory science and promoting patient access to genetic testing
- Opportunities to connect with senior staff from NIH and FDA, patient advocates, industry representatives and rare disease innovators from around the world
Celebrating your community
Each year Eurordis hold their Black Pearl awards. A celebration of our hugely diverse, multi-stakeholder, rare disease community. This year is no exception and there are only a few days left to make sure you nominate those organisations and companies who work tirelessly to bring about awareness and innovation to the field.
More than ever, in view of the drastic effect the COVID-19 pandemic is having on the rare disease community, the event will highlight the resilience and inspirational qualities of people living with a rare disease. As always, the ceremony will also mark the occasion of Rare Disease Day, an international campaign launched and coordinated by EURORDIS to empower national rare disease alliances and raise much-needed awareness.
You can make your nomination someone you admire or enter yourself, it takes just a few minutes to be in with a chance of winning one of the 13 Awards. This year's award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media and policy makers to bring about change and improve the lives of the 30 million people in Europe and 300 million people worldwide who are living with a rare disease.
More than ever, in view of the drastic effect the COVID-19 pandemic is having on the rare disease community, the event will highlight the resilience and inspirational qualities of people living with a rare disease. As always, the ceremony will also mark the occasion of Rare Disease Day, an international campaign launched and coordinated by EURORDIS to empower national rare disease alliances and raise much-needed awareness.
You can make your nomination someone you admire or enter yourself, it takes just a few minutes to be in with a chance of winning one of the 13 Awards. This year's award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media and policy makers to bring about change and improve the lives of the 30 million people in Europe and 300 million people worldwide who are living with a rare disease.
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Holistic Care Award Young Patient Advocate Award European Rare Disease Leadership Award Policy Maker Award Scientific Award EURORDIS Volunteer Awards EURORDIS Members Award International Media Awards Lifetime Achievement Award Company Award for Innovation Company Award for Patient Engagement Company Award for Health Technology |
Nominations will close on 30th September 2020
The awardees will be presented with their awards at an online ceremony on Wednesday, 24th February.
If you have any questions regarding the nomination process please email Martina Bergna, EURORDIS Events Manager
martina.bergna@eurordis.org