- OUR CORPORATE FRIENDS -
Meet our friends who are doing their bit to support our #RareRevolution
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- EVENTS -
World Orphan Drug Congress USA 2021 - 25th -27th August
The World Orphan Drug Congress USA 2021 is returning in-person this August 25-27 at the Gaylord National Resort. We are building the most comprehensive program and inclusive gathering of rare disease stakeholders ever!
Becoming the largest rare disease and orphan drug conference, globally, has allowed us to bring together leading industry, government and regulatory authorities, patient advocacy groups, payers, investors and solution providers. The attendees rely on the World Orphan Drug Congress USA to meet, brainstorm and dialogue on ways to advance orphan drug development and improve access to life-saving therapies.
Over 1,200 attendees will gather in Oxon Hill, Maryland on August 25th - 27th for the 11th edition of World Orphan Drug Congress USA.
Our conference has become the industry defining meeting on Advanced Therapies for rare diseases, featuring discussions on clinical development, manufacturing and commercialization of cell and gene therapies, as well the annual gathering for artificial intelligence and digital health solutions transforming the rare disease industry.
Becoming the largest rare disease and orphan drug conference, globally, has allowed us to bring together leading industry, government and regulatory authorities, patient advocacy groups, payers, investors and solution providers. The attendees rely on the World Orphan Drug Congress USA to meet, brainstorm and dialogue on ways to advance orphan drug development and improve access to life-saving therapies.
Over 1,200 attendees will gather in Oxon Hill, Maryland on August 25th - 27th for the 11th edition of World Orphan Drug Congress USA.
Our conference has become the industry defining meeting on Advanced Therapies for rare diseases, featuring discussions on clinical development, manufacturing and commercialization of cell and gene therapies, as well the annual gathering for artificial intelligence and digital health solutions transforming the rare disease industry.
September 27th - 30th Virtual
Precision Medicine Forum - Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. It’s widely acknowledged that patients should be involved from bench to bedside, so we have designed an unrivalled environment to facilitate dialogue between speakers and attendees, whether they are a researcher, patient, industry representative or healthcare professional. Providing individual and group networking opportunities, expert panel discussions and roundtables to delve a little deeper, we encourage candid conversations about how we as a community can increase the engagement and involvement of patients from early research to treatment pathway decisions.
Research and our experience confirm that many more patients, from a broader geography, find it easier, more cost effective, and less time consuming to be involved in a virtual setting.
Put simply, the financial and logistical barrier to entry that often exist for patient representatives does not exist at Patient Week.
As a result, Precision Medicine Forum - Patient Week brings together a group of people who might otherwise never have the opportunity to meet, share experience and expertise and form long lasting collaborations.
Research and our experience confirm that many more patients, from a broader geography, find it easier, more cost effective, and less time consuming to be involved in a virtual setting.
Put simply, the financial and logistical barrier to entry that often exist for patient representatives does not exist at Patient Week.
As a result, Precision Medicine Forum - Patient Week brings together a group of people who might otherwise never have the opportunity to meet, share experience and expertise and form long lasting collaborations.
- Live sessions to enable real life conversations in real time.
- 2hrs a day over four days so as to easily fit into your calendar.
- Interactivity is critical to us – we believe that without it attendees are not engaged.
- Everything in one place - we avoid multi-platform technology as we want to provide the best possible user experience.
The Expanded Access Summit® is the world’s largest annual conference on pre-market access to medicines. The Summit focuses on the core feasibility factors and the innovations that enable greater use of Expanded Access and other "treatment-use" trials. Join us at EA4-Virtual as we again set new best practices for integrating research into modern healthcare for everyone.
Sept 27, 11:00am – 3:00pm EST Day 1: “Hardcore History”, An Innovators Toolkit for EA
Session 1 “The Truth Behind the Headlines”: Expanded Access over 30 years
Networking Intermission
Session 2 Global regulatory landscapes, expectations, and business doctrine
Networking Intermission
Session 2 Global regulatory landscapes, expectations, and business doctrine
Sept 28, 11:00am – 3:00pm EST Day 2: The Research Value of Modern Early-Access Programs
Session 1 New tech for including more patients in clinical development
Networking Intermission
Session 2 Learning more and (more-efficiently) from treatment programs
Networking Intermission
Session 2 Learning more and (more-efficiently) from treatment programs
Sept 29, 11:00am – 3:00pm EST Day 3: The Healthcare Value of Modern Early-Access Programs
Session 1 The value prospect for HCPs, hospitals, and health systems
Networking Intermission
Session 2 The value prospect for government and private health plans
Networking Intermission
Session 2 The value prospect for government and private health plans
Sept 30, 11:00am – 3:00pm EST Day 4: X-Factors of Radical Change in Healthcare Product Access
Session 1 Speed round and interactive challenge
Special program with audience participation / breakout & report
Session 2 Partnering event, wrap-up, and prizes
Special program with audience participation / breakout & report
Session 2 Partnering event, wrap-up, and prizes
NORD Breakthrough Summit 18th - 19th October 2021
Connecting stakeholders and advancing meaningful dialogue is now more critical than ever to improving the lives of millions of patients and families around the world who are impacted by rare diseases. The 2021 NORD Rare Diseases and Orphan Products Breakthrough Summit will be presented as a virtual event on October 18 and 19, providing a safe, convenient forum for discussing the issues of greatest importance to the rare disease community now.
As we enter a new era in which technology in rare disease is accelerating, and with topics related to public health and drug pricing being top priorities in government during this pivotal time, we must act now to drive innovation, collaborate for better outcomes and assure access to care for all. Join NORD for two days of insights as we explore the life-changing experiences affecting people living with rare disease in this time of public health awareness.
As we enter a new era in which technology in rare disease is accelerating, and with topics related to public health and drug pricing being top priorities in government during this pivotal time, we must act now to drive innovation, collaborate for better outcomes and assure access to care for all. Join NORD for two days of insights as we explore the life-changing experiences affecting people living with rare disease in this time of public health awareness.