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Our Rare Revolutionaries community is a virtual meeting place for individuals and families affected by rare disease, and charities and advocates that support them. This is a closed group, allowing a safe space to connect with each other in a cross condition meeting place and to find support and build lasting rare friendships. Through this community we want to facilitate rare-to-rare peer support both virtual and via our regional meet-ups, and instigate action and change across rare disease.
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