Noonan Syndrome can make me sad sometimes because I am different to other people but I have got to meet lots of other people with Noonan Syndrome at our families days which makes me happy and thankful for being able to meet with good friends that are just like me. My family which are my mummy, daddy and my two brothers Josh and Finlay are my sidekicks and they always push me to try anything at least once. I say that my Noonan syndrome is my super power like superman gets his power from the sun. Last thing I would like to say is for the Doctors to keep asking questions and looking for answers so we can get the help we need so we can continue to thrive. Don't forget to be kind and keep smiling!!!!
6 Comments
Gemma Wilks
26/3/2019 10:46:24
Owains mummy here for more info on Owain look at Super Owain and his sidekicks on Facebook. For Noonan Syndrome information please look up the Noonan Syndrome Association based in the Uk
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Helen Matthews
27/3/2019 01:33:17
Well done Owain and Gemma! Great post.
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Kirsten Lampi
26/3/2019 16:45:48
Hats off to all our Noonan's warriors and the mamas who fight for them!!
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Christy Best
26/3/2019 22:20:19
You are amazing.......so are all your family go grab the world 🌍 xx
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Marla (Sara's mom)
27/3/2019 17:47:29
Thanks for sharing, Owain! I hope I get to see you and your family again some day.
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Lorraine O'Reilly
30/3/2019 08:23:13
Hi Owain you sound like an amazing little boy , I have a grandson called Ollie and he has Noonans too, he is a Superhero just like you and he is a Beaver
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AuthorThis blog is contributed to by the rare youth project community Archives
October 2019
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