- THE PEOPLE OF RARE -

To drive progress in the field of rare disease it requires the skills of a vast many professional organisations. There are big pharma and biotech, research and scientific institutions, medical centers and charities both big and small.  Some are vast conglomerations, small start-ups or wholly voluntary run organisations, they all play a vital role in helping us turn the tide for rare disease.

​But who are the people behind these brands? 
Who are the beating hearts who are making their mark on the work of rare disease?

---

- CEO SERIES -

Getting to know the CEO's at the helm of some of the RARE communities most influential organisations

Rick Thompson
FINDACURE
(Charity)

Sandy Royden
OPEN Health
(Corporate - Communications and Medical Access)

Becky Jenner
Rett UK
​(Charity)