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It's time to turn the tide!
To bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community.
To bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community.
Charity & advocacy
Rare Disease Awareness Day Calendar
By admin
14 February 2024
Industry Insights
Living well today: How do we make it happen for the rare diseases community?
By Rebecca Pender
13 March 2024
Press releases
Launching CamRARE’s ‘The Need for a RARE Patient Passport’ Report for Rare Disease Day
By admin
1 March 2024
Press releases
Coave Therapeutics Receives Grant from the ALS Association to Advance its CTx-TFEB Program as a Potential Treatment for All Forms of ALS
By admin
29 February 2024
Press releases
SMA Europe launches “Care for adults living with SMA in Europe: a benchmarking report.”
By admin
29 February 2024
Charity & advocacy
One in a million
By admin
28 February 2024
Patient voice
Raising a child with Hirschsprung’s disease
By admin
28 February 2024
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