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Medical

Systemic mastocytosis: A new study reveals the perceptions and realities of this rare mast cell disorder

By CONTRIBUTOR
2 October 2024

Industry Insights

Putting patients first?

By CONTRIBUTOR
2 October 2024

Reviews

RARE Reels review: Knox Goes Away

By CONTRIBUTOR
30 September 2024

Patient voice

My unending search for a diagnosis?

By CONTRIBUTOR
25 September 2024

Science & tech

Improved patient finding strategies for rare diseases – a win-win for patients and drug developers

By CONTRIBUTOR
25 September 2024

Charity & advocacy

Haemochromatosis UK helps thousands with life-threatening genetic condition to be diagnosed through postal health kits

By CONTRIBUTOR
18 September 2024

A day in the life

Drunk or disabled? – challenges with ataxia

By CONTRIBUTOR
16 September 2024

Sunday sessions

How reiki, spirituality and faith help me accept life with a rare disease

By CONTRIBUTOR
15 September 2024

Letters

The math is anything but encouraging

By CONTRIBUTOR
12 September 2024

Charity & advocacy

Alex TLC Monthly Research Summaries

By CONTRIBUTOR
12 September 2024

Industry Insights

NICE’s key developments in 2024 in summary

By CONTRIBUTOR
11 September 2024

Charity & advocacy

Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead

By CONTRIBUTOR
10 September 2024

Turning the tide for rare disease

Sickle cell disease: The urgent need for better care, increased research funding and better treatment options

By CONTRIBUTOR
8 September 2024

Patient voice

Find the power in you

By CONTRIBUTOR
4 September 2024

Charity & advocacy

SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’

By CONTRIBUTOR
31 August 2024

Industry Insights

How ‘do’ we versus how ‘should’ we think about disease awareness activities?

By CONTRIBUTOR
30 August 2024

Patient voice

Rare cancers: Sarcoma and your mental health

By CONTRIBUTOR
28 August 2024
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