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Author:
Joe Rumney
Patient voice
How CLN2 Batten disease changed our life: “A Mother’s Love”
By Joe Rumney
16 May 2024
RARE News
Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community (May 23-26, Orlando, Florida)
By Joe Rumney
14 May 2024
RARE News
Happy Heart Week: raising awareness of Barth syndrome—over a decade of hope and support
By Joe Rumney
9 May 2024
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