RARE News

RARE News

Three small research grants awarded

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17 February 2023

RARE News

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

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16 February 2023

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

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13 February 2023

RARE News

Shining the light on tube feeding

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5 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

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1 February 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

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24 January 2023

RARE News

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

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20 January 2023

RARE News

Know your sickle cell trait status, according to new campaign

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20 January 2023

RARE News

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

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19 January 2023

RARE News

Rare Disease Innovation & Partnership Summit

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19 January 2023

RARE News

Cell & Gene Therapy Summit 2023

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18 January 2023

RARE News

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

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18 January 2023

RARE News

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

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6 January 2023

RARE News

The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community

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3 January 2023

RARE News

Blueprint Medicines reports clinical data highlighting leadership in developing targeted treatment options for patients with systemic mastocytosis

By admin

22 December 2022

RARE News

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

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8 December 2022

RARE News

NFL players spotlight Sickle Cell Disease Association of America

By admin

7 December 2022

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